Cincinnati, August 5th: Family Conference and Baseball Game
Cincinnati Children’s is excited to host a family conference on August 5th from 12- 2 pm ET, featuring presentations from their top experts in CCM care, including special guest Connie…
News
July Webinar: Neuropsychological Testing Basics
Please join us on Thursday, July 20th at 7 pm ET, 4 pm PT for a webinar on neuropsychology basics. Bring your questions! We’ll talk about the basics of neuropsychology,…
Empower 2023
Empower 2023 is our internationally broadcast event to empower individuals to take action toward finding a cure for cavernous malformations. The event will provide a unique opportunity for viewers to…
Volunteer of the Month, June 2023
We’d like to recognize Matthew and Sara Baron as our Volunteers of the Month for planning their first “Rocking for a Cure” benefit concert. The event was a huge success, raising over $13,000…
Recursion’s REC-994 Trial Fully Enrolled
We are thrilled to announce that the Phase 2 safety trial of Recursion’s REC-994 medicine, being developed specifically for symptomatic CCM, has fully enrolled 60 patients ahead of schedule. Our…
