Evan Compton, May Volunteer of the Month
We are thrilled to honor Evan Compton as our Volunteer of the Month! Evan, a dedicated patient of ours for the past two years, has gone above and beyond by…
News
June Newsletter Now Online
The June 2023 newsletter, full of research and events information, is out. Read about new medicines coming into trials, our upcoming family conference, Empower 2023, and more. Read it here
May Webinar: Roundtable Discussion Managing Symptoms and Coping with CCM
Join us for our May Webinar on May 25th, at 7:00 pm ET/4:00 pm PT. We will have a panel of patients joining us to talk about how they cope,…
Alliance to Cure Wins Prestigious Rare Disease Organization Award
On this Rare Disease Day, we are honored to announce the National Organization for Rare Disorders (NORD) has awarded the Alliance to Cure Cavernous Malformation this year’s prestigious Abbey S….
April Volunteer Spotlight
We want to take a moment to express our heartfelt gratitude to Christina Campos and her incredible commitment and dedication to the Alliance to Cure Cavernous Malformation advocacy efforts. Her…
