By whatever name you know it - cavernous malformation, CCM, cavernoma, cavernous angioma - find information, opportunities, and hope here.
Focused ultrasound study published in prestigious Nature Biomedical Engineering
As published in Nature Biomedical Engineering on Tuesday, UVA's focused ultrasound study revealed that focused ultrasound stops the growth of cavernous malformations in mouse models. We first heard this exciting news at Alliance to Cure's Patient Meeting in 2023, when researcher Delaney Fisher...
MoreNewly Published CCM Clinical Care Consensus Guidelines
Updated CCM Care Guidelines are now available to all doctors and patients! New recommendations include...
More2025 CCM Patient Conference
Join us on November 6th-8th for our 2025 Patient Conference in Atlanta, GA. Thursday, November...
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What is cavernous malformation?
Cavernous malformation (CCM) is a blood vessel disorder of the brain and spinal cord. CCM can lead to strokes, seizures, and other neurological damage. Surgery is the only current treatment. CCM affects more than 3 million children and adults worldwide.
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Our Story
When we were founded in 2002, there was a void of cavernous malformation (CCM) research and information. Over the last 20 years, we have seized opportunities to bring scientists, patients, doctors, and industry partners together to advance a cure for CCM. Our work has driven research breakthroughs and improved patient care. We now have promising treatments just under five years away. We will persevere until we have a permanent cure for CCM – available, accessible, and affordable for all.
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