By whatever name you know it - cavernous malformation, CCM, cavernoma, cavernous angioma - find information, opportunities, and hope here.
Message from CEO Connie Lee
Message from CEO Connie Lee Watch this 6-minute video from CEO Connie Lee on how the Alliance to Cure Cavernous Malformation is advancing promising cerebral cavernous malformation (CCM) treatments. Our vision is permanent cure for CCM -- available, accessible, and affordable for all....
MoreDriving a Cure
Watch the Driving a Cure Video. See how your support accelerates the breakthroughs leading us...
MorePatient Navigation – Here to Help with CCM Challenges and Insurance Hurdles
Navigating life with cavernous malformation (CCM) can be especially challenging during times of change. Our...
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What is cavernous malformation?
Cavernous malformation (CCM) is a blood vessel disorder of the brain and spinal cord. CCM can lead to strokes, seizures, and other neurological damage. Surgery is the only current treatment. CCM affects more than 3 million children and adults worldwide.
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Our Story
When we were founded in 2002, there was a void of cavernous malformation (CCM) research and information. Over the last 20 years, we have seized opportunities to bring scientists, patients, doctors, and industry partners together to advance a cure for CCM. Our work has driven research breakthroughs and improved patient care. We now have promising treatments just under five years away. We will persevere until we have a permanent cure for CCM – available, accessible, and affordable for all.
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