Please Read Before Emailing
Alliance to Cure Cavernous Malformation is a patient support organization. We can not provide medical advice or recommend physicians outside of our Centers of Excellence. Before emailing for information about cavernous malformations, please read the information in the Newly Diagnosed and CCM Learning Hub sections of our website.
Our CCM Connect Program offers support services. If possible, please try these avenues before emailing our general address – you will receive a faster response.
We read emailed messages at least weekly. We can not respond to requests for general information about cavernous malformations – please be very specific in your question.
Thank you.
General Email: info@alliancetocure.org
Patient Registry: coordinator@alliancetocure.org
Fax: +1-757-623-0616
Mailing Address:
Alliance to Cure Cavernous Malformation
977 Seminole Trail Box 367
Charlottesville VA 22901
Updated 3.29.2025
