Building an engaged patient community and offering care resources is an essential part of the mission of Alliance to Cure Cavernous Malformation.
No one needs to feel alone with cavernous malformation. Alliance to Cure Cavernous Malformation offers many ways to find support online through our Facebook groups, Zoom support groups, and international partners. We offer information on various social media outlets.
We have a growing network of Community Alliances – local or regional chapters – that carry out the mission of Alliance to Cure Cavernous Malformation. These Community Alliances offer support, assist in developing Centers of Excellence, and host conferences and events. Find your local Community Alliance or and reach out to us to see if a Community Alliance is in the process of forming in your area.
Our recognized Centers of Excellence provide multi-disciplinary, coordinated, expert care for cavernous malformation (cavernoma, cavernous angioma).
Our Newsletters are produced 3 times/years and provide the most up-to-date research summaries and news. Please be sure to join our online mailing list to be notified when a newsletter is published.
We have sister organizations around the world who are advancing treatment and care in their respective countries.
Choose Member Blogs/Stories to read about other’s experiences with cavernous malformations through blogs and books. Please consider submitting your story for us to share on social media and with the press.
Updated 6.13.20
