Current News & Updates

Summer Newsletter Online

Catch up on all the latest CCM research and news including our upcoming Promise 2022 event. Our Summer 2022 Newsletter is now online.

Promise 2022 Recording now Available

Current News & Updates, Fundraising Events, Volunteer Opportunities

Get a behind-the-scenes look at the impact of our cavernous malformation community, how your contributions have helped, and why a cure is within our reach. Some of the highlights include:…

Webinar: Let’s Talk About Emulsifiers

Current News & Updates, Events & Opportunities

This webinar was recorded and can be found on our YouTube Channel: https://youtu.be/mLueRuDLriY Join Shelley Kummer-Stevens and Darla Clayton on May 25th at 7:00 pm Eastern for a conversation about…

Ascension St. John Medical Center/St. John Neuroscience Institute

Current News & Updates

Ascension St. John Medical Center’s Neuroscience Institute in Tulsa, Oklahoma has been recognized as a designated Clinical Center by the Alliance to Cure Cavernous Malformation for the treatment of cavernous malformations. A…

New Research Explains Relationship Between DVA and CCM

Current News & Updates

Researchers at Duke, U of Chicago, and Penn have identified the link between DVAs, commonly found in sporadic patients, and CCM lesions. Read more here.

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