Current News & Updates

End of Year Letter

Because of you, 2023 has been a year of significant progress! 2024 looks to be even more promising. Check out Connie Lee’s End of Year letter for highlights from this…

Caregiver Support Meeting

Current News & Updates, Events & Opportunities

Join us for a Caregiver Zoom Call on November 30th at 7:00 PM Eastern, 4:00 PM Pacific. We will be talking with author Sandy Tovray Greenberg about her book, Who…

Volunteer of the Month: Judy Kogan

Current News & Updates, Events & Opportunities

We are thrilled to recognize Judy Kogan as our Volunteer of the Month for her outstanding contributions to our organization. Judy has been our Malibu volunteer organizer for our annual…

Lurie Children’s Hospital recognized as CCM Clinical Center

Current News & Updates

The Ann & Robert H. Lurie Children’s Hospital of Chicago has been recognized as a designated Clinical Center by the Alliance to Cure Cavernous Malformation for the treatment of cavernous…

September Volunteer of the Month – Nicole Clayton

Current News & Updates, Events & Opportunities

Please join us in thanking our September Volunteer of the Month, Nicole Clayton. Nicole is a caring community member, always eager to support other members. She helps to moderate our…

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