Current News & Updates

June Newsletter Now Online

The June 2023 newsletter, full of research and events information, is out. Read about new medicines coming into trials, our upcoming family conference, Empower 2023, and more. Read it here

Alliance to Cure Wins Prestigious Rare Disease Organization Award

Current News & Updates

On this Rare Disease Day, we are honored to announce the National Organization for Rare Disorders (NORD) has awarded the Alliance to Cure Cavernous Malformation this year’s prestigious Abbey S….

Alliance to Cure Cavernous Malformation Recognizes Thomas Jefferson University Hospitals as a CCM Clinical Center

Current News & Updates

Thomas Jefferson University Hospitals in Philadelphia, Pennsylvania has been recognized as a designated Clinical Center by the Alliance to Cure Cavernous Malformation for the treatment of cavernous malformations. A cavernous…

Alliance to Cure Cavernous Malformation Recognizes Beth Israel Deaconess Medical Center as a CCM Clinical Center

Current News & Updates

Beth Israel Deaconess Medical Center has been recognized as a designated Clinical Center by the Alliance to Cure Cavernous Malformation for the treatment of cavernous malformations. A cavernous…

Join a Rare Disease Get Together Near You

Current News & Updates

What can you do to celebrate Rare Disease Day? Participate in our meet-ups! Our Virtual Rare Disease Day Virtual Meet-Up will be at 8:00 pm EST. We’ll be doing a…

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