Events & Opportunities

For support groups, webinars, and ongoing virtual events, see our Calendar.

If you’re interested in hosting an event, click here.

Watch Past Webinars on our YouTube Channel

Did you know you can catch up on most of our past webinars and many patient conference presentations on our YouTube channel anytime? This is a link to our recorded…

Webinar – Our Roadmap to a Cure

Events & Opportunities

Join Connie Lee, Psy.D., and Amy Akers, Ph.D., for an exciting update. Amy will present the brand-new CCM Cure Roadmap, our strategy for driving better CCM treatments and a cure…

Webinar- Breathing Underwater: A Caregiver’s Journey

Events & Opportunities

Register today for this month’s webinar with Eileen Benthal, Thursday, November 14th. In honor of Caregiver Appreciation Month she will discuss the journey of being a caregiver in the rare…

CCM 101

Patient Participation, Events & Opportunities

CCM 101 is an informational meeting for new members offered on the first Thursday of the month, at 7:00 PM Eastern. We’ll review slides covering the basics of the illness…

Webinar: Simple Science with Andrew Ressler, Ph.D

Events & Opportunities

Join us Thursday, September 19th, at 7:00 PM Eastern for a webinar with Dr. Andrew Ressler, who will explain some of the basics of CCM science. Please register to attend…

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