Volunteers Urgently Needed for CCM Health-Index Survey
We need 400 Alliance to Cure Cavernous Malformation members with CCM to assist in the next phase of developing the CCM Health-Index by completing a 20-minute survey three times: now,…
Patient Participation
Alliance to Cure Cavernous Malformation Receives $600,000 Award from the Chan Zuckerberg Initiative to Advance Rare Disease Research
New Grants Support Organizations Prioritizing Diversity and Diagnosis in their Disease Areas CHARLOTTESVILLE, VA (November 3, 2021) — Today, the Chan Zuckerberg Initiative (CZI) announced $13 million in funding for…
Update Your Cavernous Malformation Patient Registry Profile
Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help…
