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Today

Cincinnati Children’s Hospital Patient Conference

Register here Saturday, September 21, 2024 10:30 AM - 12:00 PM CCM Patient and Family Conference 3333 Burnet Avenue Cincinnati, OH 45229 Location D- D2.22 Reds vs Pirates baseball game at 1:10 pm (please let us know if you are interested in joining us) Contact Silia Creech at Silia.Creech@cchmc.org with any questions.

8th and Final Orange County Walk

Florence Joyner Park 22761 Olympaid Rd, Mission Viejo, CA, United States

🌟 Join Our Orange County Walk/Fun/Run to Support the Alliance to Cure Cavernous Malformation! 🌟 Imagine living each day with the fear that a sudden seizure or stroke could strike at any moment. This is the reality for over 140,000 people in the U.S. suffering from cavernous malformation, a debilitating condition caused by clusters of...

Event Series CCM Support Group

CCM Support Group

Virtual Event Virtual Event

Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.

Event Series Virtual CCM Coffee Chat

Virtual CCM Coffee Chat

Virtual Event Virtual Event

Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.

Event Series CCM Support Group

CCM Support Group

Virtual Event Virtual Event

Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.

Event Series Virtual CCM Coffee Chat

Virtual CCM Coffee Chat

Virtual Event Virtual Event

Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.

Event Series CCM Support Group

CCM Support Group

Virtual Event Virtual Event

Please join us every Thursday evening at 8:00 PM Eastern for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZMsf--tqT0vGdGT_ELuDWrCdontUVsXDPt0 After registering, you will receive a confirmation email containing information about joining the meeting.

Rhythms of Hope-Concerts for Cavernous Malformation

Experience a night of music and unity with our nationally broadcast virtual concert, where top artists perform live to raise funds and awareness for cavernous malformation research. Watch from the comfort of your home or attend one of our exclusive in-person events across the country, featuring local performances and community activities. What is Rhythms of...

Event Series Virtual CCM Coffee Chat

Virtual CCM Coffee Chat

Virtual Event Virtual Event

Grab a coffee and join us for a casual support group meetings on Mondays at 12:00 PM to 1:00 PM Eastern. Register for the meeting here: https://us02web.zoom.us/meeting/register/tZ0pc-GqrzMvE93LyYtCrYnvvnoMFE-PjDgN Reach out to Darla at darla@alliancetocure.org for more information.

Event Series Men’s Group

Men’s Group

Virtual Event Virtual Event

Living with a rare disease can be challenging, and we understand that connecting with others who truly get what you're going through is important. Our Men's Support Group is a safe, welcoming space where men can share experiences, offer support, and build connections. We know that it can sometimes be hard to open up or...