20%-25% of people with cerebral cavernous malformations have a genetic mutation that can be passed on to children. This section offers information to help you decide whether genetic testing is appropriate for you or your loved one. The Alliance to Cure Cavernous Malformation offers free genetic testing to US and Canadian residents to meet our criteria.
Learn about familial versus sporadic CCM and why genetic testing is not the tool to tell you which you have. Do I Have Sporadic CCM? includes a decision tree to help guide you.
Deciding whether to test yourself or your child is personal. Why Be Tested? explores the pros and cons of genetic testing for familial CCM.
CCM genetic testing is specialized. If you are in the United States and your health insurance covers genetic testing, you can work with your doctor and one of the Genetic Testing Labs to arrange your test.
The Alliance to Cure Cavernous Malformation can facilitate genetic testing. Learn how to access our Free Genetic Testing Program.
Updated 3.20.25
