Patient Navigation & Resources

Connect with our Patient Navigation and get personalized help along your CCM Journey. 

We’re so glad you’re here. To connect with a Patient Navigator, email us at help@alliancetocure.org.

All we need is your name and how you’d prefer we contact you—either by email or phone. If you’d like a return call, please be sure to include your phone number. You’re welcome to share a bit about your situation in your message, but that’s completely optional.

We aim to respond within one business day, so you won’t be waiting long. We’re here to support you. No one should have to walk their CCM journey alone.

What is Patient Navigation

Resources

Not Ready to Reach Out Just Yet?
That’s completely okay—taking the first step can look different for everyone.

To help you get started, we’ve pulled together a mix of helpful resources right here on this page, including the tiles below which include a combination of trusted content from Alliance to Cure Cavernous Malformation and carefully selected external sources. You’ll also find valuable information throughout our Learning Hub, For Patients page, and Newly Diagnosed page.

Whether you’re exploring your diagnosis, looking for support, or just figuring out what’s next, we hope these resources make things a little easier.

Symptom and Diagnosis HelpFinding a Doctor, Preparing for Surgery, and RehabilitationFinancial Resources

Support GroupsDisability Resources