Zoom Support & CollabORation Groups
Support Groups. We host cavernous malformation support groups via Zoom on Mondays and Thursdays. Send us questions or topics you’d like to discuss at info@alliancetocure.org.
Regional Groups and Events: Check our calendar for more events both online and in person. Email Linda@AllianceToCure.org for more information.
Facebook GROUPS
Main Group. We have an active community on Facebook. Even if you do nothing else on Facebook, please consider joining our private Alliance to Cure Cavernous Malformation Facebook Group to give and receive support from other Alliance to Cure Cavernous Malformation members. You must request to join.
Regional Groups. We host the following U.S. regional groups on Facebook: Northeast, Mid-Atlantic, Southeast, Great Lakes/Central Plains, Southwest, Rocky Mountains, Pacific.
Subgroups. We host these subgroups on Facebook: Parents, Members with Brainstem Lesions, Members with Spinal Lesions.
International. Many of our international affiliates host Facebook groups. Links to these can be found on our International Cavernoma Groups page.
Social Media
For updates and expert videos, please subscribe to our YouTube channel and follow us on Facebook, Instagram, and LinkedIn.
Patient Stories, Books, and Blogs
Reading the stories of others whose lives are affected by cavernous malformation provides comfort and offers the kind of information that can only come from experience.
