News

2024 End of Year Message

It’s been one year since we asked you to support the Alliance’s audacious effort to create our own research lab — the CCM CureDriver™ Lab — to test potential cavernous…

Webinar – Our Roadmap to a Cure

Events & Opportunities

Join Connie Lee, Psy.D., and Amy Akers, Ph.D., for an exciting update. Amy will present the brand-new CCM Cure Roadmap, our strategy for driving better CCM treatments and a cure…

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Patient Participation

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Webinar- Breathing Underwater: A Caregiver’s Journey

Events & Opportunities

Register today for this month’s webinar with Eileen Benthal, Thursday, November 14th. In honor of Caregiver Appreciation Month she will discuss the journey of being a caregiver in the rare…

Webinar-Advocacy In Action

Events & Opportunities

Join us Thursday, October 24th at 7 pm ET for an insightful webinar, “Advocacy in Action: Navigating Medical, Legislative, and Beyond”, where we’ll explore how to effectively advocate for cavernous…

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