Monthly Webinars
Check our calendar for upcoming webinars
Webinar recordings
Movement Project Kick Off with Steve Cairns
Recursion Trial Updates with Chris Gibson
Updates to the Care and Consensus Guidelines and Atorvastatin Study Results
Healing Beyond the Diagnosis: Understanding and Coping with Medical Trauma in Cavernous Malformation
Our Roadmap to a CCM Cure: December 2024
Advocacy in Action: Navigating Medical, Legislative, and Beyond: October 2024
Simple Science Webinar with Andrew Ressler, Ph.D: September 2024
Patient conference Highlights: August 2024
Managing Seizures with Aria Fallah, MD, MS and Samuel S. Ahn, MD: June 2024
Introducing Ovid & Graviton’s New ROCK2 Inhibitor for CCM
Focused Ultrasound Updates with Delaney Fisher, Ph.D.: April 2024
Big Picture Updates on Guidelines, Trials, and Biomarkers with Dr. Awad: February 2024
How to Host a Successful Fundraiser: January 2024
News and Updates with Connie Lee and Amy Akers: December 2023
Caregiver Support Meeting: November 2023
Surgical Perspective: Molecular Approaches to Ruptured Brainstem Cavernomas: October 2023
Talking to Kids about Cavernous Malformation, and Introducing the New Book – Biscochito: September 2023
Neuropsychology Evaluations – The Basics: July 2023
Coping with CCM Patient Panel Webinar: May 2023
Integrating anatomy, virtual reality, augmented reality, and physiological testing in brain: April 2023
Ask the Alliance with the Alliance to Cure Staff: February 2023
Headache and Pain Treatment for CCM Patients with Dr. Tarun Girotra: January 2023
Surgery for Intracranial Cavernous Malformation: December 2022
Cavernous Malformation and the Aging Brain: October 2022
Recursion’s REC-994 Sycamore Trial: News and Updates – September 2022
What is leaky gut and how can it be healed – August 2022
Make Your Insurance Work for You with Emily Brown from the Patient Advocate Foundation – June 2022
Let’s Talk About Emulsifiers with Shelley Stevens and Darla Clayton – May 2022
Dr. Lawton: Surgical Techniques and Q&A session – April 2022
Dr. Awad Presents a Trial Update and Q&A Session – February 2022
Dr. Ed Smith Talks about Pediatric CCM and Surgical Advances – January 2022
Empowerment through Research Participation – Dr. Connie Lee, Spencer Rosero – October 2021
Recursion Pharmaceutical REC-994 Clinical Trial – Dr. Lisa Boyette – September 2021
CCM Clinical Decision-Making – Dr. Jan-Karl Burkhardt – July 2021
Rapamycin, Atorvastatin Trial, Biomarkers, and More – Dr. Issam Awad – June 2021
PIK3CA Mutation and CCM – Dr. Mark Kahn and Dr. Doug Marchuk – June 2021
Solving the Problem of a Leaky Lesion – Dr. Anuska Andjelkovic-Zochowski – May 2021
CCM Genetics and You – Dr. Connie Lee – April 2021
Understanding and Supporting Children with CCM – Dr. Christine Petranovich – March 2021
CCM Research and COVID Updates – Dr. Issam Awad, University of Chicago – February 2021
Accelerating Our Journey to a Cure – Dr. Connie Lee, Alliance to Cure Cavernous Malformation – December 2020
Atorvastatin Trial Update and Other CCM Research – Dr. Issam Awad, University of Chicago – October 2020
A Patient’s Guide to Imaging – Dr. Blaine Hart and Dr. Marc Mabray, University of New Mexico Health Sciences – September 2020
CCM Updates in the COVID-19 Era – Dr. Issam Awad, University of Chicago – August 2020
