Fall 2021 Newsletter Online
The Alliance to Cure Cavernous Malformation Fall 2021 newsletter, with news about research, CCM Centers of Excellence, and upcoming events, is now available online. We’re excited about 2022 and the…
News
Volunteers Urgently Needed for CCM Health-Index Survey
We need 400 Alliance to Cure Cavernous Malformation members with CCM to assist in the next phase of developing the CCM Health-Index by completing a 20-minute survey three times: now,…
Alliance to Cure Cavernous Malformation Receives $600,000 Award from the Chan Zuckerberg Initiative to Advance Rare Disease Research
New Grants Support Organizations Prioritizing Diversity and Diagnosis in their Disease Areas CHARLOTTESVILLE, VA (November 3, 2021) — Today, the Chan Zuckerberg Initiative (CZI) announced $13 million in funding for…
Penn Medicine/The Hospital of the University of Pennsylvania Recognized
Alliance to Cure Cavernous Malformation is excited to announce a new addition to its growing network of Centers of Excellence. The organization has recognized Penn Medicine/The Hospital of the University…
Help the Alliance to Cure Cavernous Malformation Community by sharing a recipe for the 3rd Edition of the CCM Healthy Cookbook! In light of research indicating that diet, specifically emulsifier…
