Researchers have begun to include humans in cavernous malformation studies, which is known as clinical research. These clinical studies can help us understand how the illness affects people over time (natural history studies) or can assign volunteers to groups that receive health-related interventions to compare their effectiveness (clinical trials). These research studies require human participants like you.
Everyone with a cavernous malformation in the brain or spinal cord can join the Alliance to Cure Cavernous Malformation Registry. Registering takes only 20 minutes, and you will receive personalized notifications about new research, which will help you better understand the illness.
The Alliance to Cure Cavernous Malformation conducts genealogical research to identify common ancestors for our three founder mutations: CCM1 Common Hispanic Mutation, CCM2 Exon 2-10 Deletion, and CCM2 Ashkenazi Mutation. If you are affected by one of these mutations, we invite you to participate in our Alliance to Cure Historical Projects.
Read through this section of our website to learn about clinical research studies that are recently completed or underway.
Updated 4.7.25
