The Alliance to Cure Cavernous Malformation, the leading global organization in urgent pursuit of improved care and a cure for the rare disease that causes seizures and strokes at any age, attended a ceremony on April 10 in Houston recognizing Texas Children’s Hospital as the first Clinical Center for cavernous malformation in Texas.
Clinical centers are hospitals recognized by Alliance to Cure for specialized treatment and management of cavernous malformation, a cerebrovascular disease where leaky blood vessels form in the brain or spinal cord and bleed, causing debilitating symptoms in an estimated 138,000 Americans. There is no treatment for cavernous malformation other than brain or spinal surgery, which can lead to additional deficits.
“We are thrilled to recognize Texas Children’s for its expertise in providing care to children diagnosed with cavernous malformation,” said Connie Lee, Alliance to Cure Founder and CEO. “We are proud to welcome Texas Children’s to our growing network of Clinical Centers and Centers of Excellence, ensuring that more cavernous malformation patients will have access to safer, better care and surgical outcomes.”
Alliance to Cure started the national network of cavernous malformation Clinical Centers and Centers of Excellence in 2016 to expand access to safe, effective treatment. At Clinical Centers and Centers of Excellence for cavernous malformation, patients can expect care that meets or exceeds the “Guidelines for the Clinical Management of Cerebral Cavernous Malformations,” a peer-reviewed publication outlining recommendations by Alliance to Cure’s Scientific Advisory Board.
About the Alliance to Cure Cavernous Malformation
The Alliance to Cure Cavernous Malformation is the leading global organization driving research, expanding access to care, and supporting those affected by cavernous malformation. For more than 20 years, Alliance to Cure has served as a hub that connects researchers, clinicians, patients, and pharmaceutical and government leaders working to find a cure for cavernous malformation.
About Texas Children’s Hospital
Texas Children’s, a nonprofit health care organization, is committed to creating a healthier future for children and women throughout the global community by leading in patient care, education and research. Consistently ranked as the best children’s hospital in Texas and among the top in the nation, Texas Children’s has garnered widespread recognition for its expertise and breakthroughs in pediatric and women’s health. The system includes the Texas Children’s Duncan NRI; the Feigin Tower for pediatric research; Texas Children’s Pavilion for Women, a comprehensive obstetrics/gynecology facility focusing on high-risk births; Texas Children’s Hospital West Campus, a community hospital in suburban West Houston; and Texas Children’s Hospital The Woodlands, the first hospital devoted to children’s care for communities north of Houston. The organization also created Texas Children’s Health Plan, the nation’s first HMO for children; Texas Children’s Pediatrics, the largest pediatric primary care network in the country; Texas Children’s Urgent Care clinics that specialize in after-hours care tailored specifically for children; and a global health program that s channeling care to children and women all over the world. Texas Children’s Hospital is affiliated with Baylor College of Medicine. For more information, visit www.texaschildrens.org.
Caption for photo: Alliance to Cure Founder and CEO Connie Lee (holding plaque) recognizes Texas Children’s Hospital as a Clinical Center for cavernous malformation. Director of Pediatric Cerebrovascular Neurosurgery Dr. Samuel McClugage (fourth from right) is the medical director of the Clinical Center.
