The University of California San Francisco Medical Center

UCSF CCM Center of Excellence

Phone: (415) 353-2529

Address: 505 Parnassus Avenue, San Francisco CA 94143

Number of Outpatient CCM appointments annually: ~60

Number of Inpatient patient days annually: ~80

Number of CCM research publications 2013-2018: 12

Patients may also be seen at UCSF Benioff Children’s Hospital and Zuckerberg San Francisco General Hospital

Faculty

Research Program Director: Dr. Helen Kim

Medical Co-Director: Dr. Nerissa Ko

Surgical Co-Director: Dr. Ethan Winkler

Nurse Coordinator: Sharon Hoang, RN

Epileptologist: Dr. Tina Shih

Geneticist: Dr. Joseph Shieh

Neuroradiologist: Dr. Steven Hetts

Pediatric Neurosurgery: Dr. Nalin Gupta

Pediatric Neurology: Dr. Heather Fullerton

Pediatric Neurology: Dr. Christine Fox

UCSF Cavernous Malformation Program

Second Opinion Program

While UCSF does not have a designated second opinion clinic, they often see CCM patients for second opinion consultation and welcome patients and families to call our Referral Center at (888) 689-UCSF.

Summary of UC San Francisco Research Program

At UCSF, we have an active clinical research program in cerebrovascular malformations funded by NIH grants to Dr. Helen Kim through the UCSF Center for Cerebrovascular Research (CCR). Three of these grants are focused on CCM, characterizing rates of clinical outcomes and identifying factors associated with disease severity and progression in patients with CCM. Understanding the natural history, clinical variability, and factors that modify risk in patients with CCM is important for future targeted drug clinical trials that will ultimately benefit patients. We see over 60 CCM cases (both sporadic and familial) annually at UCSF for evaluation and management, primarily through vascular neurosurgery (Ethan Winkler, MD, PhD) and vascular neurology (Nerissa Ko, MD, MS) services. Both Drs. Winkler and Ko are close clinical collaborators as well as co-investigators or consultants on several of Dr. Kim’s grants.

Visitor Guides

To help make your visit to UCSF as comfortable as possible please read through the updated visitors guide for adult patients and pediatric patients.

Overnight Accommodations

For information about hotels, motels and short-term apartment rentals, please visit our Campus Life Services website.
Please make your lodging arrangements as far in advance as possible because San Francisco hotels tend to be busy.
See the UCSF Benioff Children’s Hospital website for information about accommodations for the parents and family members of pediatric patients.